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{bio,medical} informatics

Thursday, October 25, 2001

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find related articles. powered by google. The Boston Globe More than tissue samples

"Ardais Corp. is building the world's best human tissue bank.

Starting with what would normally have been discarded tissue from major hospitals, this small private company has developed a powerful set of tools to distinguish its collection from all others: procedures to ensure the quality of the frozen tissue, protocols to protect the confidentiality of donors, and computer programs to make accessing the tissues a breeze for researchers."

"But when the phrase ''tissue bank'' was uttered during a recent interview, Ardais president and chief executive Eric B. Gordon blanched."

redux [09.02.00]
find related articles. powered by google. NPR : All Things Considered Tissue Banks

"Robert talks with Barry Eisenstein M.D., Vice President of Science and Technology for Beth Israel Deaconess Medical Center, and Professor of Medicine at Harvard Medical School, about his hospital's participation in creating an international tissue bank. They will be asking patients for permission to sell tissue left over from surgery. The tissue will be used by scientists worldwide for genetic research."

redux [05.15.00]
find related articles. powered by google. The New York Times Who Owns Your Genes?
[requires 'free' registration]

""I just wanted to do something good," Mr. Fuchs said. "But once money came into the picture, why not have it be shared with me?"

These days more and more patients are asking the same question. Laboratories offer tests for more than 700 human genes, with more being discovered almost daily. And, for almost every gene, some medical institution or some company owns a patent on its use.

"The value of patients' tissues has potentially gone up enormously," said Dr. Barry Eisenstein, the vice president for science and technology at the Beth Israel Deaconess Medical Center in Boston. But, Dr. Eisenstein said, patients whose cells provided the genes that have been patented are almost never compensated."

redux [05.11.01]
find related articles. powered by google. BioMedNet "Failure of integrity" over data protection threatens disease monitoring
[requires 'free' registration]

"Guidelines on patient confidentiality could undermine medical research, with lethal consequences, said one of the world's leading epidemiologists today. "By making [patient] records anonymous, so even bona fide medical researchers cannot access them, [the guidelines] will cause many deaths," insisted Richard Peto, co-director of the Clinical Trial Service Unit and Epidemiological Studies Unit at the University of Oxford. "It's not beneficial to anyone.""

"Peto was highlighting concern about the threat to the UK's patient registries, which monitor disease, from heart conditions to cancer. The registries link identifiable data from numerous sources, and feed the information to researchers."

[ rhetoric ]

Bioinformatics will be at the core of biology in the 21st century. In fields ranging from structural biology to genomics to biomedical imaging, ready access to data and analytical tools are fundamentally changing the way investigators in the life sciences conduct research and approach problems. Complex, computationally intensive biological problems are now being addressed and promise to significantly advance our understanding of biology and medicine. No biological discipline will be unaffected by these technological breakthroughs.


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