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Wired News
Turning Their Genes Into Green"A Massachusetts company wants to turn a 50-year, nonprofit government research project into for-profit research that would study citizens' most private parts: their genes.
"The people are in Framingham, Massachusetts, and the company calls itself Framingham Genomic Medicine. Decades ago, most of the people in the town agreed to be subjects in a publicly funded series of heart-disease studies that have since told us almost everything we now know about the causes of heart problems."
"The success of the company hinges perhaps most importantly on the people of Framingham, and the company must be very careful not to lose their trust."
"" The idea behind the company came in response to [the] simple problem that the data is not entered and organized in a way that would allow a more modern and aggressive analysis,” said Carleton. “Much of it was collected in the pre-computer era. If you could interest a company to put up the money, a huge amount of work could be done in a short period of time with a return on investment.”
The two parties had initially talked about the company providing corporate clients with a period of corporate exclusivity while offering immediate access to academic researchers, but neither side felt comfortable with the arrangement, Carleton said.
After a long round of public discussion on the ethics of providing this publicly-funded data to a for-profit company, the study participants were notified on Tuesday that the data would not be given to Framingham Genomics Medicine."
[requires 'free' registration]
"Reconsidering a plan they proposed last spring, Boston University and the National Heart, Lung and Blood Institute say they will not provide data from a federal study to a newly formed company that wanted to analyze and sell it."
"The difficulty, said Susan Ellen Paris, a Boston University spokeswoman, was that while the study's mandate was to make its data available, Framingham Genomic Medicine, as a profit-making venture, wanted some exclusive rights to data for a period of time. As a result of the decision, the company is now to be disbanded."
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“Bioinformatics will be at the core of biology in the 21st century. In fields ranging from structural biology to genomics to biomedical imaging, ready access to data and analytical tools are fundamentally changing the way investigators in the life sciences conduct research and approach problems. Complex, computationally intensive biological problems are now being addressed and promise to significantly advance our understanding of biology and medicine. No biological discipline will be unaffected by these technological breakthroughs.”
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